Lucy Revealed
Lucy enjoying free time
Lucy, a 14-year-old living with Rett syndrome, and her parents, Matthew and Anna, share their journey. It is a story of joy and hope, of strength and dedication, but mostly, it is a story of love.
Matthew and Anna have worked tirelessly to surround Lucy with an enriched environment that includes a community of educators, therapists, and others who share their commitment to helping Lucy “be the best Lucy she can be.” Their resolve has taken Lucy to high school, mountain climbing, skiing, and horseback riding—experiences any child might have.
Discover more about Lucy from her parents, Anna and Matthew
Life With Lucy
Lucy’s Rett diagnosis wasn’t obvious at first. Watch as Anna and Matthew, Lucy’s parents, describe Lucy’s journey to her diagnosis, and the impact it had on their family of five.
Diagnosis
Find out what led Matthew and Anna to Lucy’s diagnosis of Rett syndrome.
Impact of Diagnosis
Hear from Anna and Matthew, Lucy’s parents, as they talk about how their two oldest sons adjusted to life after the Rett diagnosis.
Advice for Newly Diagnosed
Watch Anna and Matthew, Lucy’s parents, as they give advice to other parents navigating a new Rett syndrome diagnosis.
Lucy enjoying art
Lucy at hippotherapy
Lucy with her family in Paris
Lucy enjoying a ski day with her family
Lucy exploring with her parents, Anna and Matthew
Every time we see her do things like this, our world has opened up at what’s possible. We don’t know what comes next…but her spirit is limitless.
Matthew, Lucy’s Dad
